Jump to content
New registrants - please do NOT register using your real name (or anything resembling such) - your privacy is important to us and real-name registrations will be deleted. Please re-register with an anonymous display name. ×

RubyRosie

Member
  • Content Count

    596
  • Joined

  • Last visited

Profile Information

  • Gender
    Female
  • Location
    I live in the frozen north
  • Interests
    CraftyAF

Previous Fields

  • MembershipType
    Survivor

Recent Profile Visitors

3,720 profile views
  1. To mother- Why didn't you protect me? Did you ever love me? To her husband- You deserved a painful demise. To the abusive uncles- Alcoholism is not an excuse. To my ex-h R*** is sex without consent.
  2. So, the clinic visit... Here's how it went. I scheduled a visit with the OBGYN because when I called the urgent care clinic the triage nurse said that due to my situation it would be best if I just went directly to them, because urgent care doesn't do "procedures" and they'd most likely be referring me to the OBGYN department anyways. So I'm there,filling out forms. I get called back and the nurse is just a flat out bit*h. She hones in on the "how many pregnancies" and "how many children" questions real quick. She says, "it says here 3 pregnancies, 2 births. Did you have an abor
  3. This is going to be a painful post. Please skip it if you need to. Part of me working through this is writing it out. I know that for quite a few of you, part of working through your own stuff does not include reading a first person account of my physical and mental anguish. Please do what you need to do for you. Take care of yourself my friend. This post has taken me about a month to write. RR If you have gone through something like this, I hope you know that you are not alone. There are so many women who've gone through this and for a variety of reasons we don't really see eac
  4. RubyRosie

    18 - Art stuff

    @Mimi M.thanks for your kind words. Yes, usually I find drawing or painting soothing. It helps get me out of my head sometimes. RR
  5. So I started DBT group therapy like a month ago. I was a little excited by the opportunity to learn some pretty basic mental health skills. I've always been really good at taking care of everyone else's emotional shit. The cost to me was most of the time my needs are dead last on my own list of priorities. I was a good friend to others just maybe not so much to myself. So, as the group facilitators explained it, it's learning ways to help you think about your mental health differently. A lot of the skills are pretty basic elementary school level self soothing, mindfulness, emotional regulation
  6. For readablity's sake the first half of this was written almost a month ago. The two subjects do intersect, though, so I'm including them in the same post. The past few weeks I've been thinking about this quote. It has a series of statements like "people will be jerks, help them anyway. People will act selfishly, forgive them anyway." The context of the original quote is pretty interesting. Here's more about that if you care to do a lil more reading. https://quoteinvestigator.com/tag/mother-teresa/ TLDR-it wasn't Mother Theresa who said it originally. The part that stuck in my
  7. Cap please help I sent you a DM

    RR

     

  8. RubyRosie

    21 - O2ctopus

    @behindthesehazeleyes thanks:)
  9. @behindthesehazeleyes thank you for reading as much as you could. I totally understand the feeling of other ppls stories hitting too close to home. Yes, I know how suffocating small town gossip can feel. And everyone either knows everything or they think they know everything. Sometimes I don't know which is worse - them knowing how bad things are or them thinking that my parents were "just the sweetest" people and couldn't possibly be capable of the abuse I suffered. It's true that other places, nice places, do exist. I think every neighborhood/community has its own sha
  10. I look a lot like my mother. I grew up in a really rural area, the kind of place where everyone knows everyone. So even if I didn't know them, most people knew that I was "biomom's kid." When I was a teenager I used to hate this. It still kind of irritates me, but with several decades of experience, and some blunt stone faced answers to total strangers (more on that some other day) I've learned to deal with it... sorta. It helps that I live hundreds of miles from the little blink-and-you'll-miss-it place I was raised. The thing that bugs me is that it's irritating as fuck how much I hate
  11. So, I grabbed my bag that was next to the door and headed to my sister's car. (For full backstory, read the previous post - #20) I had had a few seconds to throw my wallet, sketchbook, a few pads, pencils and liner pens, and water bottle in a little bag. After the first epi shot they had me on an iv bag and the nurse said she'd be checking on me off and on. The iv bag would take about an hour, and sorry there's no tv. Lol. I hadn't even noticed. I asked if she minded if I drew and could she pls hand me my sketchbook? It started as a sketch of the oxygen monitor clipped to m
  12. After pics, Friday morning. Feeling so much better.
  13. TW - I went to the ER with a bad reaction to a new med. It was really quick how it happened and I was mostly calm during it, but I am still just kinda processing it all. It's probably the closest I've been to death myself. This is a copy/paste from my status update on my profile. So, I had to go into the ER on Wednesday. I had a delayed onset allergic reaction to the humira shot from the week before. The rest of this story is pretty bad, but I'll just leave it up to you to decide if you want to pause here and read more later or what. I don't want to add t
  14. TW -  I went to the ER with a bad reaction to a new med. It was really quick how it happened and I was mostly calm during it, but I am still just kinda processing it all. It's probably the closest I've been to death myself.

     
    So, I had to go into the ER on Wednesday. I had a delayed onset allergic reaction to the humira shot from the week before.
     
    The rest of this story is pretty bad, but I'll just leave it up to you to decide if you want to pause here and read more later or what. I don't want to add to your stress, but I also went thru a pretty big thing and I feel like I'm close enough to a lot of you that if we were in the same town I'd definitely have already called you yesterday to tell you what happened and that I'm ok. Tired and sore and frazzled, but ok.
     
    So there you have it ('it' being your opportunity to read this sometime later if you want, or not at all, your choice).
     
     
     
    So I had my first humira shot on Thursday the 18th of Feb. It wasn't so bad. Within a couple of days I noticed that my hands and feet were less swollen and painful. I could make a full tight fist with both hands by the end of the weekend. Shit was going good.
     
    Then, 12 days later, at like midnight Monday night/Tuesday morning I noticed my belly was itchy and the place I had the shot was about 3in across and very pink. I took a pic of it, rubbed some benadryl gel on my belly and went back to bed.
     
    On Tues all hell broke loose. I called the rheumatologist and then the pharmacist. Was told to start taking benadryl pills every 4 hours (not to exceed 400mg per day!), and watch for signs of airway constriction. Call 911 or go to the ER if that does happen.
     
    Tuesday sucked. I was covered in hives practically all over. It was definitely more rash than non-rash skin by lunchtime Tuesday. I couldn't put anything on the broken out skin because I was told that it would be dangerous to add benadryl or cortisone on the rash and less effective to doit topically than orally, which was working more on my whole system. My cheeks were puffy. My shoulders were covered in red hives. 
     
    Wed was rough. Everything was just so fucking itchy. More than half my body was covered in dark pink and red hives. By just before lunchtime my cheeks were red and swollen so I could feel my pulse in my face. And then at lunch I couldn't swollow right. This was the line I knew that I didn't want to cross.
     
    I called my sis. She was on her way home. If she hadn't picked up my next call would have been to 911. But she picked up. It told her about my throat. I called to give the er a heads up that this was happening. So they'd know to expect us. It took like 10 min for her to get here and then we took off for the hosp. By the time we were a block away from the hosp I couldn't breathe through my nose. It would make a tiny squeek noise when I tried to close my mouth and exhale. So I opened my mouth wide and tried to take slow deep breaths. As my sister was pulling into the ambulance bay I could feel the choking feeling. It was hard to breathe through my mouth even.
     
    The nurses met me with a wheelchair and the doc saw me like a minute laster. He went through the listen to my heart and breathing thing. got a wooden stick and loked in the back of my throat,Then started explaining that really the only treatment for this was an epipen, that's the treatment, in a kind of calm but explaining why this was necessary. He didn't have to talk me into it. I interrupted his explanation and said "I'm sold, let's do it" in a really shakey raspy voice. He said "what?" He nodded toward the nurse who took the cue to run out of the room. She said "she's in." as she headed to the door. He asked me about other meds, did I have recreational drug use, heart problems and looked at my throat again.
     
    The nurse came back a few seconds later, she got my thigh alchoholed off and gave me the shot in my thigh. Then she started an iv, took blood for labs, and gave me some kind of iv med that was supposed to be an antihistamine and made my mouth taste like licking a cast iron pan.
     
    Then thy asked me how to spell my name and all the questions for registering. Lol.
     
    Ffwd almost 4½ hrs later and I'm well enough that they sent me home. Still covered in hot pink hives, but with a total of 2epipen injections and 2 liters of saline and IV meds for allergies and to stop nauseous feelings. I could breathe!
     
    Yesterday I was pretty out of it. My sis stayed to help me. Today my hives are just faint pink color. Feeling shaky. But that's normal, at least that is what they told me. I'm seeing my regular dr next week.
     
    I'm probably going to post a few pics on my blog. Nothing gruesome or genitals, but just a before the ER pic and a Friday morning pic.
     
    I feel so fucking grateful to just be able to breathe. My throat is so sore. It feels like I was choked. The doc said it will feel like that for a while. Because I was choked. The tissue damage done by the anaphylaxis feels like an angry hand crushed my windpipe. I look in my mouth with a flashlight and a mirror and I can see the bruising in the back of my mouth. My eyelids are covered in tiny little dark purple pinprick bruises from the burst capillaries.
     
    And I'm still in shock.
    Thanks for reading this.
     
    RR
    1. Show previous comments  1 more
    2. mini.finch

      mini.finch

      Oh my goodness. I'm so sorry you went through that! How frightening! I'm so glad that you're ok. That you were able to get help. My goodness. So so glad you're alright. Take good care of yourself and rest as much as you can!

    3. RubyRosie

      RubyRosie

      @Field8 Thankyou. Yes, the er doc wrote me a prescription so I'll have 2 epipen s to keep with me in case I should need them.

      @mini.finchthank you. It all happened so quickly that I was kind of in shock. I think I might still be. Yes, I'm going to need naps and tea.

    4. abhaya

      abhaya

      Oh my goodness, that sounds really terrifying, but also that you really did an amazing job staying focused and calm when it was needed.  I'm so glad you're doing better and made it through. Hopefully there will be other options to address you medical need that won't put you at risk for a similar reaction. 

×
×
  • Create New...